Health Transitions

 

Adolescent Health Transition Project

http://depts.washington.edu/healthtr/

The Adolescent Health Transition Project is an online resource for teens and young adults that have special health care needs, chronic illness, and/or physical or developmental disabilities.   The websites provides transition resources for teens and young adults, schools, and health care providers. The health transition resources include forms, checklists, modules and websites.  

Advancing Health Care Transition: Multi-Stakeholder Roundtable Report

http://www.ncwd-youth.info/sites/default/files/HCT-Roundtable-Report-2012.pdf

The report highlights the need for supports in advancing health care transition for youth with disabilities. Youth with chronic conditions and disabilities will have to transition from pediatric to adult health care system. They will need to acquire skills to navigate the adult health system to manage their health. During the summer 2012, The HSC Foundation, in partnership with Physician-Parent Caregivers (PPC), and the Institute for Education Leadership (IEL), facilitated a roundtable discussion with 42 national experts that focused: (1) Meeting the health care needs of youth and young adults with chronic conditions and disabilities; (2) Transformations of primary care in health care transition; and, (3) Improving heath care workforce for health care transition. For the results of the roundtable discussions highlighted in the report, please go to: http://www.ncwd-youth.info/sites/default/files/HCT-Roundtable-Report-2012.pdf

DOL Office of Disability Employment Policy (ODEP) Releases New Study on Healthcare Transition and Employment

http://www.dol.gov/odep/pdf/2013ODEPHealthyReport.pdf

Because the ability to manage one's health is critical to going to school, learning, and transitioning into employment, ODEP commissioned this study in 2012 to better understand the relationship between disability (including chronic health conditions); health and wellness; and transition and employment outcomes for youth with disabilities. In addition, the study examined the role health-care providers play in establishing employment expectations.

Despite growing recognition of the importance of health-care transition as youth move from school to work and independent living within the health-care community, the study revealed that youth with chronic health conditions and other disabilities face a number of challenges in accessing health-care transition services. Included among these are low expectations, lack of time, and inadequate payment and training related to employment among providers; systems with distinct and disparate outcomes and goals; and the use of biological/physiological versus bio-psychosocial treatment approaches. In addition to explaining how a number of provisions in the Affordable Care Act (ACA) have significant potential to transform health-care transition planning, the study addresses the need to:

  • underscore the interdependence between health, wellness and employment through education and outreach to youth and their parents and other caring adults; and
  • provide health-care providers and other youth service professionals with professional development opportunities to gain the knowledge, skills and abilities needed to guide youth through a coordinated self-determined, cross-discipline transition planning process.

To learn more about the challenges and opportunities associated with implementing purposeful planned health-care transition planning and its impact on employment for youth with chronic health conditions and other disabilities, view the full policy brief online at: http://www.dol.gov/odep/pdf/2013ODEPHealthyReport.pdf.

Healthy Transitions New York

http://www.healthytransitionsny.org

Health Transitions is an online resource that assists youth with disabilities in transitioning from pediatric to adult health care.   The website offers opportunities for youth with developmental disabilities to create their own circles of support online.   My Place is a place where youth with developmental disabilities can create an account to create their own circle of support network. Youth will be able to develop their own personal health bio, calendar, set goals, discussion board, as well as access other tools to plan for adult health care services.

Healthy Transitions: A Pathway to Employment for Youth with Chronic Health Conditions and Other Disabilities

http://www.dol.gov/odep/pdf/2013ODEPHealthyReport.pdf

The Office of Disability Employment Policy at the U.S. Department of Labor recently released publication entitled, Healthy Transitions: A Pathway to Employment for Youth with Chronic Health Conditions and Other Disabilities. The policy brief highlights the results of the interviews with stakeholders and an in-depth review of the literature.   The topics focused in the brief are as follows: what is health care transition planning; the role of health care providers; challenges to purposeful, planning health care transition planning; opportunities to transform health care transition planning through the Affordable Care Act. This policy brief is designed to assist states and districts, schools, and families to better assist transitioning youth with chronic health conditions and other disabilities. For a more in-depth review of the policy brief, please to: http://www.dol.gov/odep/pdf/2013ODEPHealthyReport.pdf

Kids as Self-Advocates

http://fvkasa.org/index.php

Kids as Self-Advocates (KASA) is an organization that was created by youth with disabilities to assist youth with disabilities in becoming self-advocates in their lives and communities. They have information and resources to assist youth with disabilities in health care transitions. All resources are created by youth with disabilities using their stories.

National Health Care Transition Center

http://www.gottransition.org/

The National Health Care Transition Center’s “Got Transition?” is a Web site for health care professionals, families, youth, and state policy makers focusing on a young adult’s transition from pediatric to adult health care. This site offers an information exchange about health care transition, particularly as pertaining to youth with special health care needs. Transition tools and tips and other resources are available under each of the main categories of Youth, Family, Providers, and States.

NCWD/Youth Releases Policy Brief on Health Care Transition

http://www.ncwd-youth.info/policy-brief-05

NCWD/Youth has released the InfoBrief, The Guideposts for Success: A Framework for Families Preparing Youth for Adulthood, which examines how the Guideposts for Success can be used as a framework from which families of youth with disabilities can consider the support needs of their youth during the transition planning process. This information will also be helpful to professionals seeking strategies to effectively partner with families, and to advocates looking to empower families in the transition process.The brief is available online.

TeensHealth

 
TeensHealth is an online resource for teens that need to find information on health related information (e.g. food & fitness, infections, & drugs/alcohol).   TeensHealth is funded through The Nemours Foundation, a non-profit organization that supports educating teens and young children on health lifestyles. In addition, TeensHealth provides healthy recipes for teens, including teens with disabilities.
 
The National Alliance To Advance Adolescent Health
 
 
The National Alliance To Advance Adolescent Health is a non-profit organization that focuses on issues relating to health care transitions for transitioning aged youth and their families. They disseminate fact sheets, info briefs, reports as well as journal articles that focus on adolescent physical, behavioral, and sexual health care. In addition, they have a list of resources for families and educators on organizations that might be able to assist them in their search for information.
 
Youth Health Facts
 
 
This pdf is a collection of fact sheets for and by youth by Wisconsin’s Healthy and Ready to Work Advisory. Its practical, hands-on information include resources about technical college, self advocacy, career planning, how to stay safe, and university life.

 

This document was published in part under a grant from http://www.hscfoundation.org/ The HSC Foundation with The George Washington University. No official endorsement by The HSC Foundation or of any product, commodity, service or enterprise mentioned in this publication is intended or should be inferred. 

Permission to use, copy, and distribute this document for non-commercial use and without fee, is hereby granted provided that appropriate credit to the HEATH Resource Center is included in all copies. March 2014.

Last Updated (Sunday, 2 March 2014)